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Please say a little prayer for Grayson!
Robin:
Adding my prayers.
Ninny:
Grayson is in Birmingham they sent him up this afternoon and the first thing they wanted to do was a CT scan with contrast and my son said NO!! So now we are waiting to see what's next. This child doesn't need any unnescessary tests run on his brain! They were initially going up for an EEG and his MRI. they just wanted to do the CT scan and send him home! >:(
I'll come back with more when I know something.
Kathy
meee:
--- Quote from: Ninny on May 19, 2009, 12:28:02 AM ---Grayson is in Birmingham they sent him up this afternoon and the first thing they wanted to do was a CT scan with contrast and my son said NO!! So now we are waiting to see what's next. This child doesn't need any unnescessary tests run on his brain! They were initially going up for an EEG and his MRI. they just wanted to do the CT scan and send him home! >:(
I'll come back with more when I know something.
Kathy
--- End quote ---
Oh my, I hadn't seen this Kathy when I replied on FB.
Continued prayer for you all.
hugs&luv,meee
Linny:
Hey Kathy! I just read the good report on Gray on his care page!
Praise God!Lin
Ninny:
Yes! The good new is that there is NO change in the tumor seven months after surgery!! No Fluid, No swelling! He has been doing some things that have disturbed his parents, but the doctor said it's not related to the tumor! I think maybe his fever was a virus and he may have had a reaction to the antibiotic shot they gave him...who knows? but he isn't seeing things that aren't there anymore! The pediatrician said he thought he might be having some petite mal seizures, but the neuro doctor said NOPE, this type of tumor doesn't cause seizures, he's not having them!
They have an appointment with a pediatric neurologist on Thursday here locally. so pray that he will be able to give them some assurance that maybe his behavior IS normal and that maybe he had a fever virus and if not then they can explore other avenues to get to the bottom of it all! Thank you all for staying with me on this wild journey! Thank you for your prayers! You are all so sweet! I'll let you know what happens on Thursday...
Kathy :-*
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