I was so overwhelmed last night, I was in the midst of a miracle! I was able to actually hug Elijah so tightly!! That little boy is such a testimony of the resiliency of children! Elijah is 2 1/2 now and he is only able to walk with assistance, although he can climb and he crawls everywhere and pulls up and gets himself wherever he needs to go! It was my extreme joy last night to hold his little hand and help him walk from the playroom to the living room at my son's house..the little boy has so much hair!!!
his mommy and daddy are going to let it grow as floppy as it can just to celebrate the fact that he's alive and that his hair covers the ugly scar on the top of his head! Please keep praying for Elijah, they removed the part of his brain that controls his balance so the reason he doesn't walk, but I told his daddy that the rest of his brain could take over and nothing is impossible with God!
Hannah Grace is such a little sweetheart! she was kind of quiet when I was there, but I'm sure she was better after a little while. She is such a strong little kid! I just keep looking at the two of them and thinking that they just keep pushing forward! Hannah Grace you will remember hovered near death several times during her stem cell transplants...so sad that these sweet babies have to go through that!!
Elijah lost his total blood volume THREE times during his initial tumor removal ...he was transfused three times!!! and yet he lived!! He was so close to death during his 2 stem cell transplants AND he almost died when they harvested his stem cells!! He was supposed to have had a third transplant and his parents refused it..his daddy said if he lives, he going to have as normal a life as possible, but we are NOT going to kill him with the treatment! So now they just trust God to hold his life...if his cancer returns they will decide what to do when/if the time comes..his parents are just putting it in God's care!
Anyway the pictures I took on my cell phone last night weren't very good, but my son is taking lots of pictures today so I will have some of those up as soon as possible!!
Oh, and I forgot to mention Grayson..the child is such a ruffian when he plays with his brothers, but last night when he was playing with Elijah it was so precious..he was crawling everywhere just like Elijah! He never played rough or anything! He was getting toys out of the toy box and handing them to Elijah and his baby sister!! I witnessed such a pleasant and sweet spirit in Gray last night..it was as if he understood what was going on! amazing! When Grayson plays with Cole, his baby brother who is 16 months old he just will walk up to him and bowl him over!! he sits on him, and knocks him down and grabs toys away from him!! But none of that last night!!
We have become so aware of the many children out there who have no representation in their illnesses, but we ask God to please watch over each one and our family lifts up by name the ones we know of and we ask God to watch over all of them because we know that even though WE don't know who they are GOD DOES!!!
God is good!!
Kathy